• xmlui.mirage2.page-structure.header.title
    • français
    • English
  • Help
  • Login
  • Language 
    • Français
    • English
View Item 
  •   BIRD Home
  • LEDa (UMR CNRS 8007, UMR IRD 260)
  • LEDa : Publications
  • View Item
  •   BIRD Home
  • LEDa (UMR CNRS 8007, UMR IRD 260)
  • LEDa : Publications
  • View Item
JavaScript is disabled for your browser. Some features of this site may not work without it.

Browse

BIRDResearch centres & CollectionsBy Issue DateAuthorsTitlesTypeThis CollectionBy Issue DateAuthorsTitlesType

My Account

LoginRegister

Statistics

Most Popular ItemsStatistics by CountryMost Popular Authors
Thumbnail - Request a copy

Informal care in multiple sclerosis

Bayen, Eléonore; Papeix, C; Pradat-Diehl, P; Lubetzki, C; Joël, Marie-Eve (2015), Informal care in multiple sclerosis, Annals of Physical and Rehabilitation Medicine, 58, Supplement 1, p. 105. 10.1016/j.rehab.2015.07.255

Type
Article accepté pour publication ou publié
Date
2015
Journal name
Annals of Physical and Rehabilitation Medicine
Volume
58
Number
Supplement 1
Publisher
Elsevier
Pages
105
Publication identifier
10.1016/j.rehab.2015.07.255
Metadata
Show full item record
Author(s)
Bayen, Eléonore
UPMC - Faculté de médecine Pitié Salpétrière
Papeix, C
Service de Neurologie [CHU Pitié-Salpêtrière]
Pradat-Diehl, P

Service de médecine physique et de réadaptation [CHU Pitié-Salpêtrière]
Physiologie et physiopathologie de la motricité chez l'homme
Laboratoire d'Imagerie Biomédicale [LIB]
Lubetzki, C
Service de Neurologie [CHU Pitié-Salpêtrière]
Biologie des Interactions Neurones / Glie
Centre de Recherche de l'Institut du Cerveau et de la Moelle épinière [CRICM]
Institut du Cerveau et de la Moëlle Epinière = Brain and Spine Institute [ICM]
Joël, Marie-Eve
Laboratoire d'Economie de Dauphine [LEDa]
Abstract (EN)
BackgroundHome care for patients with multiple sclerosis relies largely on informal caregivers (ICs).MethodsWe assessed ICs objective burden (Informal Care Time, ICT) and ICs subjective burden (Zarit Burden Inventory, ZBI) and their explanatory factors.ResultsICs (n = 99) were spouses (70%), mean age 52 years, assisting disabled patients with a mean Expanded Disability Status Scale (EDSS) of 5.5, with executive dysfunction (mean DysExecutive Questionnaire [DEX] of 25) and a duration of MS ranging from 1 to 44 years. Objective burden was high (mean ICT = 6.5 hours/day), mostly consisting of supervision time. Subjective burden was moderate (mean ZBI = 27.3). Multivariate analyses showed that both burdens were positively correlated with higher levels of EDSS and DEX, whereas co-residency and IC's female gender correlated with objective burden only and IC's poor mental health status with subjective burden only. When considering MS aggressiveness, it appeared that both burdens were not correlated with a higher duration of MS but rather increased for patients with severe and early cognitive dysfunction and for patients classified as fast progressors according to the Multiple Sclerosis Severity Scale.ConclusionMS disability course and IC's personal situation must be evaluated to understand the burden process and to implement adequate interventions in MS.
Subjects / Keywords
Multiple sclerosis; Informal caregiver; Burden; Multiple Sclerosis Severity Scale
JEL
I11 - Analysis of Health Care Markets
I12 - Health Behavior

Related items

Showing items related by title and author.

  • Thumbnail
    Health status and work burden of Alzheimer patients’ informal caregivers: Comparisons of five different care programs in the European Union 
    Royer, Anne-Charlotte; Ponton-Sanchez, Alice; Joël, Marie-Eve; Colvez, Alain (2002-06) Article accepté pour publication ou publié
  • Thumbnail
    Quality Assurance Policies and Indicators for Long-Term Care in the European Union 
    Fermon, Béatrice; Joël, Marie-Eve (2012) Rapport
  • Thumbnail
    The Long-Term Care System for the Elderly in Portugal 
    Samitca, Sanda; Joël, Marie-Eve; Dufour-Kippelen, Sandrine (2010-06) Rapport
  • Thumbnail
    The Long-Term Care System for the Elderly in France 
    Marmier, Mathilde; Duchêne, Catherine; Joël, Marie-Eve; Dufour-Kippelen, Sandrine (2010-06) Rapport
  • Thumbnail
    L'aide informelle apportée aux personnes jeunes atteintes de handicap neurologique : analyse économique de quatre modèles neuro-pathologiques 
    Bayen, Eléonore (2015-06) Thèse
Dauphine PSL Bibliothèque logo
Place du Maréchal de Lattre de Tassigny 75775 Paris Cedex 16
Phone: 01 44 05 40 94
Contact
Dauphine PSL logoEQUIS logoCreative Commons logo